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The following is a list of all instruments that have been approved by the
Scientific Advisory Committee of the Medical Outcomes Trust. Click
on the title of each instrument for a description and information about obtaining it. |
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Instruments are no longer distributed by the Medical Outcomes Trust. It
will be necessary for you to contact the original author or the source cited
in the information about each tool to determine where to obtain approval
for use of a particular tool.. |
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Generic Instruments |
| Condition-Specific Instruments |
(NOTE: This instrument may be
obtained from Susan V. Eisen, Center for Health Quality, Outcomes & Economic
Research (CHQOER), Edith Nourse Rogers Memorial Hospital (152), Bldg 70, 200
Springs Road, Bedford, MA 01730; phone: 781-687-2872; fax: 781-687-3106,
http://www.va.gov/chqoer).
| *general health | *family cohesion |
| *physical functioning | *change in health |
| *limitations in schoolwork and activities with friends | *bodily pain or discomfort |
| *behavior | *self-esteem |
| *mental health | *limitations in family activities |
| *emotional or time impact on the parent |
The CHQ has been shown to be useful in comparing groups of children within HMOs, doctor's offices, schools, including onsite clinics, clinical trials, and large population based research efforts (e.g., Medicaid). Scoring algorithms for all forms are documented on a computer diskette included with the CHQ User's Manual.
Please visit www.healthact.com or www.qualitymetric.com for more information.
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*to
describe the health of a single group of adolescents;
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*to
compare groups of adolescents;
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*to
assign youths to one of thirteen specific health profile types; and
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*to
evaluate the impact on adolescent health of changes in health or welfare
policy or evaluate the effect of a large clinical or policy intervention.
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Original Version Author: George Parkerson
The DUKE is a 17-item generic questionnaire that measures respondent-reported functional health status and health-related quality of life during a one-week time period for adults 18 years or older. It is user-friendly because its items are small in number, brief, and easy to understand, and because each item has only three simple response options. It can be self-administered or interviewer-administered usually in less than five minutes. Scoring for the 11 scales of the DUKE can be done manually or by computer.
Six scales measure functional health. They are physical, mental, social, general, perceived health, and self-esteem. Five scales measure dysfunctional health. They are anxiety, depression, anxiety-depression, pain, and disability.
The physical, mental, social, and perceived health scales and the disability scale are independent of each other in that none of their items are shared, whereas the other scales have shared items.
(NOTE: This instrument may be ordered from: http://healthmeasures.mc.duke.edu)
Quality of Well-Being Scale (QWB)
Primary Care Assessment Survey (PCAS)
Original Version Author: John E. Ware, Jr.
The SF-12® is a multipurpose short-form (SF) generic measure of health status. It was developed to be a much shorter, yet valid, alternative to the SF-36® for use in large surveys of general and specific populations as well as large longitudinal studies of health outcomes. The 12 items in the SF-12® are a subset of those in the SF-36®; SF-12® includes one or two items from each of the eight health concepts. Thus, the SF-12® measures eight concepts commonly represented in widely used surveys: physical functioning, role limitations due to physical health problems, bodily pain, general health, vitality (energy/fatigue), social functioning, role limitations due to emotional problems and mental health (psychological distress and psychological well being). Both standard (4-week) and acute (1-week) recall versions are available.
The Medical Outcomes Trust (MOT), Health Assessment Lab (HAL) and QualityMetric Incorporated, co-copyright holders of all SF-36®, SF-12® and SF-8™ Health Surveys, have merged their licensing and user registration programs, with the objectives of simplifying licensing and user registration and better meeting the needs of the many new academic, commercial, and other licensees.
Please visit www.sf36.org for more information.
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*limitations
in physical activities because of health problems;
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*limitations
in usual role activities because of physical health problems;
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*bodily
pain;
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*general
health perceptions;
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*vitality
(energy and fatigue);
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*limitations
in social activities because of physical or emotional problems;
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*limitations
in usual role activities because of emotional problems; and
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*mental
health (psychological distress and well-being).
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The surveys standardized scoring system yields a profile of eight health scores and two summary measures and a self-evaluated change in health status.
The Medical Outcomes Trust (MOT), Health Assessment Lab (HAL) and QualityMetric Incorporated, co-copyright holders of all SF-36®, SF-12® and SF-8™ Health Surveys, have merged their licensing and user registration programs, with the objectives of simplifying licensing and user registration and better meeting the needs of the many new academic, commercial, and other licensees.
Please visit www.sf36.org for more information.
Original Version Author: Elizabeth Juniper
This is a 32-item disease-specific instrument for adults with asthma. The aim of the AQLQ is to reflect areas of function important to adult asthmatics. Available in both interviewer-administered self-administered forms, the four domains measured by the AQLQ are activity limitations, emotional function, exposure to environmental stimuli, and symptoms.
(NOTE: This instrument may be obtained from Professor Elizabeth Juniper, 20 Marcuse Fields, Bosham, West Sussex, P018 8NA, UK; phone: +44 (0) 1243 572124; fax: +44 (0) 1243 573680, www.qoltech.co.uk).
Original Version Author: Elizabeth Juniper
This is a 13-item disease-specific instrument designed to measure the impact of children's asthma on their primary caregiver's quality of life, specifically, how it measures normal daily activities and contributes to anxieties and fears. The two domains measured by the PAQLQ are activities and emotions.
(NOTE: This instrument may be obtained from Professor Elizabeth Juniper, 20 Marcuse Fields, Bosham, West Sussex, P018 8NA, UK; phone: +44 (0) 1243 572124; fax: +44 (0) 1243 573680, www.qoltech.co.uk).
Original Version Author: Albert Wu
The MOS-HIV is a brief, comprehensive health status measure containing 35 questions that measure 10 dimensions of health: general health perceptions, pain, physical functioning, role functioning, social functioning, energy/fatigue, mental health, health distress, cognitive function, and quality of life. A single item is also included to assess health transition. Subscales of the MOS-HIV are scored as summated rating scales on a 0 to 100 scale; higher scores indicate better health. In addition to these subscales, two summary scores can be generated: physical health summary and mental summary scores. The instrument takes approximately five minutes to complete and can be self-administered. Alternatively, it can be given as a face-to-fact or telephone interview.
Information
Packet includes...
Migraine Specific Quality of Life (MSQOL)
Original Version Author: Donald Patrick
The MSQOL is a 25-item self-administered instrument developed to measure long-term effects of migraine and migraine treatment on quality of life. Items are summed to provide an overall score and three sub-scores measuring physical, emotional, and social domains. A total MSQOL score can also be calculated.
This instrument has also been translated in several languages.
Information Packet includes...
Translation Information Packet includes...
Original Version Author: Jackie Kwong
The MSQ v.2.1 is a 14-item, self-administered instrument covering areas of specific concern to persons with migraine. Specifically, it addresses the three factors of role restrictive, role preventive, and emotional function. It was developed from the MSQ v.1.0; its content was improved by rewording of different items for greater clarification and shortened for easier administration. The MSQ v.2.1 is intended to respond to a perceived need to develop a health status measure that would adequately focus on the physical and emotional limitations which are typically associated with migraine headaches.
This
instrument has also been translated in several languages; the SAC approved
the translation process. The translations are as follows:
| *Canadian English (ca-e) | *German (de) |
| *Canadian French (ca-f) | *Italian (it) |
| *Danish (dk) | *Spanish (es) |
| *Dutch (nl) | *Swedish (se) |
| *Finnish (fi) | *UK English (uk) |
| *Flemish (be) | *Hungarian (hu) |
| *French (fr) | *Greek (gr) |
Information Packet includes...
Original Version Author: Nancy C. Santanello
The 24-Hr-MQOLQ is a 15-item, self-administered questionnaire aimed at assessing the quality of life of migraine sufferers within a 24-hour period after having taken migraine medication and within the first 24 hours of a migraine attack. The items cover five domains, which are work, social, energy, vitality, feeling, concerns, and symptoms. The 24-Hr-MQOLQ is designed to assess the health of specific populations at a point in time.
Information Packet includes...
St. George's Respiratory Questionnaire- UK Parent Version (SGRQ-UK)
Original Version Author: Paul Jones
The St. George's Respiratory Questionnaire (SGRQ) is a disease-specific measure used to assess patients with mild to severe airway disease. Developed by Paul Jones at St. George's Hospital in London in 1990, this measure is a disease-specific instrument designed to measure impact on overall health, daily life, and perceived well-being. It was developed for use by patients with fixed and reversible airway obstruction. The measure consists of 50 (76 responses) items that produce three domain scores and one overall score measuring: Symptom (frequency and severity); Activity (activities that cause or are limited by breathlessness); and Impacts (social functioning, psychological disturbances resulting from airways disease). It is important to note that Section I (Symptoms) contains items on a five-point Likert scale; Sections II (Activity) and III (Impacts) are dichotomous (yes/no) items.
The SGRQ-UK Parent Version has been
evaluated and approved as a self-administered instrument:
| * to assess the health of specific populations at a point in time |
| *to monitor the health of specific populations over time, both cross-sectionaly and longitudinally |
| *to evaluate the efficacy and effectiveness of health care interventions |
The process used to translate the UK Parent Version to the US Version has been evaluated and approved by the MOT Scientific Advisory Committee whereas the full psychometric properties of the latter have not been evaluated yet.
(NOTE: For more information about the St George's Respiratory Questionnaire (SGRQ), please go to www.healthstatus.sgul.ac.uk. This instrument may be obtained from Professor Paul Jones by contacting Sue Adie at St George's, University of London (sadie@sgul.ac.uk).
Original Version Author: John Spertus
The SAQ is a 19-item, self-administered questionnaire designed to measure functional status of coronary artery patients. The questionnaire is composed of five scales to assess clinically important dimensions of coronary artery disease: physical limitation, anginal stability, anginal frequency, treatment satisfaction, and disease perception. The SAQ has been demonstrated to be responsive to both major changes in clinical status (i.e., improvement in angina-related problems as a result of angioplasty) and smaller changes in angina-related functional status.
With
the assistance of the MAPI Research Institute, the SAQ was translated
into the following languages in accordance with the Trust's Translation
Criteria as outlined in the 1997 Bulletin. These translations
are no longer distributed by the Trust; for information on how to obtain
these translations, please go to www.mapi-research.fr.
| *Australian English (au) | *Italian (it) |
| *Canadian French (ca-f) | *Modification of the original US English version (us) |
| *Danish (dk) | *Norwegian (no) |
| *Dutch (nl) | *Spanish (es) |
| *French (fr) | *Swedish (se) |
| *German (de) | *UK English (uk) |
Please visit www.cvoutcomes.org for more information.
Urinary Incontinence-Specific Quality of Life Instrument (I-QOL)
Original Version Authors: Donald L. Patrick, Mona Martin, Donald M. Bushnell
The I-QOL is a self-report instrument containing 22 items covering three domains of quality of life: avoidance and limiting behavior (8 items), psychosocial impacts (9 items) and social embarrassment (5 items). The I-QOL is intended to be a quality of life measure specific to persons with urinary incontinence and reflective of significant concerns related to urinary incontinence symptoms. Each item is rated from "extremely" to "not at all." Each domain can be scored separately, and a total score can also be calculated. Higher scores are better quality of life. The I-QOL is intended to be able to assess the health of specific populations at a point in time and to monitor health of specific populations over time. It is meant to be used in epidemiological investigations, clinical trials and program evaluations.
This instrument has also been translated into a number of languages.
Please visit www.seaqolgroup.org or e-mail seaqol@u.washington.edu for more information.
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