Resources: Measures for Evaluating Outcomes in HIV Management

AIDS Health Assessment Questionnaire (AIDS-HAQ)

Lubeck DP, Fries JF. Changes in quality of life among persons with HIV infection. Quality of Life Research 1992; 1:359-66.

HIV Overview of Problems-Evaluation System (HOPES)

Ganz PA, Schag CAC, Kahn B, Peterson L. Assessing the quality of life of HIV infected persons: clinical and descriptive information from studies with HOPES. Psychological Health 1994; 9:93-110.

Hays RD, Shapiro MF. An overview of generic health-related quality of life measures for HIV research. Qual Life Res 1992; 1(2):91-97.

Schag CAC, Ganz PA, Kahn B, Peterson L. Assessing the needs and quality of life of patients with HIV infection: development of the HIV Overview of Problems-Evaluation System (HOPES). Quality of Life Research 1992; 1:397-413.

HIV-PARSE Instrument

Berry SH, Bozzette SA, Hays RD, et al. Measuring patient-reported health status and experience in advanced HIV disease: the HIV-PARSE survey instrument. Santa Monica: RAND, 1994.

Bozzette SA, Hays RD, Berry SH, Kanouse DE. A Perceived Health Index for use in persons with advanced HIV disease: derivation, reliability, and validity. Med Care 1994; 32(7):716-31.

MOS-HIV Health Survey

Carretero MD, Burgess AP, Soler P, Soler M, Catalon J. Reliability and validity of an HIV-specific health-related quality-of-life measure for use with injecting drug users. AIDS 1996; 10(14):1699-705

Hughes TE, Kaplan RM, Coons SJ, Draugalis JR, Johnson JA, Patterson TL. Construct validities of the Quality of Well-Being Scale and the MOS-HIV-34 Health Survey for HIV-infected patients. Med Decis Making 1997; 17(4):439-46.

Murri R, Ammassari A, Fantoni M, Scoppettuolo G, Cingolani A, De Luca A, Damiano F, Antinori A. Disease-related factors associated with health-related quality of life in people with nonadvanced HIV disease assessed using an Italian version of the MOS-HIV Health Survey. J Acquir Immune Defic Syndr Hum Retrovirol 1997; 16(5):350-6.

Wu AW, Jacobson DL, Berzon RA, Revicki DA, van der Horst C, Fichtenbaum CJ, Saag MS, Lynn L, Hardy D, Feinberg J. The effect of mode of administration on medical outcomes study health ratings and EuroQol scores in AIDS. Qual Life Res 1997; 6(1):3-10.

The Quality of Well-Being Scale (QWB)

Kaplan RM, Anderson JP, Wu AW, et al. The quality of well-being scale. Applications on AIDS, cystic fibrosis, and arthritis. Med Care 1989; 27:S27-S43.

Kaplan RM, Patterson TL, Kerner DN, Atkinson JH, Heaton RK, Grant I. The Quality of Well-Being scale in asymptomatic HIV-infected patients. HNRC Group. HIV Neural Behavioral Research Center. Qual Life Res 1997; 6(6):507-14.

SF-36 Health Survey

Lamping DL. Methods for measuring outcomes to evaluating inteventions to improve health-related quality of life in HIV infection. Psychology and Health 1994; 9:31-49.

The Sickness Impact Profile (SIP)

O'Dell MW, Meighen M, Riggs R. Correlates of fatigue in HIV infection prior to AIDS: a pilot study. Disabil Rehabil 1996; 18(5):249-54.

Ragsdale D, Morrow JR. Quality of life as a function of HIV classification. Nurs Res 1990; 39(6):355-59.

Weinstein BD. Assessing the impact of HIV disease. Am J Occup Ther 1990; 44(3):220-26.

	November 1998 - Volume 3 - Issue 4 A Publication for Members of Medical Outcomes Trust
				Resources Measures for Evaluating Outcomes in HIV Management

				Condition-Specific Functional Status/Quality of Life Measures AIDS Health Assessment Questionnaire (AIDS-HAQ) Lubeck DP, Fries JF. Changes in quality of life among persons with HIV infection. Quality of Life Research 1992; 1:359-66. HIV Overview of Problems-Evaluation System (HOPES) Ganz PA, Schag CAC, Kahn B, Peterson L. Assessing the quality of life of HIV infected persons: clinical and descriptive information from studies with HOPES. Psychological Health 1994; 9:93-110. Hays RD, Shapiro MF. An overview of generic health-related quality of life measures for HIV research. Qual Life Res 1992; 1(2):91-97. Schag CAC, Ganz PA, Kahn B, Peterson L. Assessing the needs and quality of life of patients with HIV infection: development of the HIV Overview of Problems-Evaluation System (HOPES). Quality of Life Research 1992; 1:397-413. HIV-PARSE Instrument Berry SH, Bozzette SA, Hays RD, et al. Measuring patient-reported health status and experience in advanced HIV disease: the HIV-PARSE survey instrument. Santa Monica: RAND, 1994. Bozzette SA, Hays RD, Berry SH, Kanouse DE. A Perceived Health Index for use in persons with advanced HIV disease: derivation, reliability, and validity. Med Care 1994; 32(7):716-31. MOS-HIV Health Survey Carretero MD, Burgess AP, Soler P, Soler M, Catalon J. Reliability and validity of an HIV-specific health-related quality-of-life measure for use with injecting drug users. AIDS 1996; 10(14):1699-705 Hughes TE, Kaplan RM, Coons SJ, Draugalis JR, Johnson JA, Patterson TL. Construct validities of the Quality of Well-Being Scale and the MOS-HIV-34 Health Survey for HIV-infected patients. Med Decis Making 1997; 17(4):439-46. Murri R, Ammassari A, Fantoni M, Scoppettuolo G, Cingolani A, De Luca A, Damiano F, Antinori A. Disease-related factors associated with health-related quality of life in people with nonadvanced HIV disease assessed using an Italian version of the MOS-HIV Health Survey. J Acquir Immune Defic Syndr Hum Retrovirol 1997; 16(5):350-6. Wu AW, Jacobson DL, Berzon RA, Revicki DA, van der Horst C, Fichtenbaum CJ, Saag MS, Lynn L, Hardy D, Feinberg J. The effect of mode of administration on medical outcomes study health ratings and EuroQol scores in AIDS. Qual Life Res 1997; 6(1):3-10. Generic Functional Status/ Quality of Life Measures The Quality of Well-Being Scale (QWB) Kaplan RM, Anderson JP, Wu AW, et al. The quality of well-being scale. Applications on AIDS, cystic fibrosis, and arthritis. Med Care 1989; 27:S27-S43. Kaplan RM, Patterson TL, Kerner DN, Atkinson JH, Heaton RK, Grant I. The Quality of Well-Being scale in asymptomatic HIV-infected patients. HNRC Group. HIV Neural Behavioral Research Center. Qual Life Res 1997; 6(6):507-14. SF-36 Health Survey Lamping DL. Methods for measuring outcomes to evaluating inteventions to improve health-related quality of life in HIV infection. Psychology and Health 1994; 9:31-49. The Sickness Impact Profile (SIP) O'Dell MW, Meighen M, Riggs R. Correlates of fatigue in HIV infection prior to AIDS: a pilot study. Disabil Rehabil 1996; 18(5):249-54. Ragsdale D, Morrow JR. Quality of life as a function of HIV classification. Nurs Res 1990; 39(6):355-59. Weinstein BD. Assessing the impact of HIV disease. Am J Occup Ther 1990; 44(3):220-26. See also "Evaluating the Outcomes of HIV Disease: Focus on Health Status Measurement" by Dr. Berzon and Dr. Lenderking on page 1.